Tag: Noida

  • Are businesses missing out on opportunities to sensitise & include?

    Starbucks outlet at Noida Sector 16B where the baristas use sign language
    Starbucks outlet at Noida Sector 16B where the baristas use sign language Photograph: Shruti Pushkarna

     

     

    By Shruti Pushkarna

     

    Shruti PushkarnaThis week started with waking up to the news of Morbi bridge collapse and the death toll crossing 130. Since 2020, health, education, employment, entertainment and almost every aspect of our lives have been reeling under the aftermath of Covid 19. News reports and social conversations revolve around natural or manmade disasters, rape and murder, fiscal scams and political horse trading.

     

    Radicalisation and inflation are on the rise. Cars, petrol, houses, food, everything costs more. There are no jobs.  Businesses are struggling. We are taxed for everything, including hospital room rent.

     

    In short, an average Indian is grappling with a gazillion problems on a daily basis. If your own issues don’t depress you enough, there is communal hyperbole to push you towards hopelessness.

     

    A simple ask for empathy seems unreasonable against this ubiquitous backdrop of societal grief. At a time, when the daily commute to work and back is an exercise in aggression due to bad roads, bad driving and bad traffic, how can anyone retain their sensitivity towards another human being?

     

    Thousands of people in urban and rural parts of the country can’t think beyond arranging two square meals a day. No wonder politicians and corporate giants get away with dirty ploys and false promises, because who is keeping track anyway?

     

    Fighting for inclusion and access for persons with disabilities sometimes seems secondary in this context. Especially if a large part of advocacy involves calling out the gaps and faults. At times, it helps to apply a two-pronged approach to the same problem. Where shrill activism fails, positive reinforcement does the trick.

     

    On that optimistic note, let me refrain from citing unmet targets and implementation loopholes pertaining to the country’s disabled population in today’s piece. Instead I want to share two encouraging encounters which deserve propagation.

     

    Due to temporary confinement following a knee injury, my movements inside and outside the house were possible only with the aid of a wheelchair. Desirous of watching a movie in the cinema hall, I booked a seat in PVR Director’s Cut at Ambience Mall, Delhi. I assumed there would be wheelchair access to the last row of seats I booked. But when I reached the assigned auditorium, the staff enquired if I could stand up and walk at all. Used to taking my mother (in her wheelchair) around inaccessible spaces, I was ready to slip into my activist avatar, demanding access. Just then the extremely polite personnel brought out a motorised wheelchair and helped me shift out of mine.

     

    Before anyone else entered the hall, I was escorted up the several set of stairs, seated secured with a seatbelt. It took the wheelchair operator around ten to fifteen minutes to transport me to my seat. He did that with patience and grace. I was mightily impressed. Of course, similar treatment was meted out at the time of exiting the hall. In addition, as my husband escorted me to the accessible washroom, the PVR staff jumped up to help, ensuring the facility was clean.

     

    My inability to walk didn’t hamper my entertainment experience, thanks to the trained and empathetic staff. There are definitely solutions available to accommodate and include, even in physical spaces that are built discarding the principles of universal design.

     

    I also noticed fellow movie-goers observe how a young person with an impairment was out and about, enjoying a fun evening like anyone else. If there were people speculating why did I venture out at all, I’m certain there were an equal number wondering, why not!

     

    Subtle sensitisation supersedes stereotypes.

     

    A few days ago, when I went down to a newly opened Starbucks to fetch myself my morning dose of caffeine, I was in for a pleasant surprise. I noticed the baristas at work were quietly focused on their jobs except they exchanged a few signs with each other as orders were passed on.

     

    Curious, I asked the cashier if they were hearing impaired. Her response was affirmative. All the seven baristas were hearing and speech impaired and their two managers were fluent in sign language. The cashier proudly shared that she was pursuing an advanced course in Indian Sign Language to further bridge the communication gap.

     

    With a barista at the Starbucks outlet
    With a barista at the Starbucks outlet

    As I collected my cup of coffee, I remembered to sign ‘Thank You’ to the cheerful server. I also signed to check if I could take a picture with him. He obliged, acknowledging my honest attempt to communicate in an inclusive language.

     

    This Starbucks is located on the ground floor of a commercial building that houses several private offices and a co-working space, in Noida Sector 16B. High influx of professionals provides an unmissable opportunity for sensitisation. Hiring persons with disabilities in a mainstream job helps counter misconceptions along with restoring agency and dignity.

     

    These two recent incidents speak of the power of change that is possible with certain additions and adjustments to a limited (and rigid) idea of normal. Publicising and broadcasting such acts of inclusion can whip up support for the excluded (disabled, elderly, severely ill) sections of the population. Practical demonstrations also help individuals and institutions realise that incorporating accessibility is not unfathomable.

     

    Here’s hoping that several such reports feature on the ‘good news’ sections of mainstream media.

     

     

    So why are we publishing this column on an A&M site? Well, we strongly feel that the media can dramatically transform the world of persons with disabilities. And this series can help bring forth issues that the media must champion to create a truly inclusive and accessible India. To write this column, we invited Shruti Pushkarna, a former journalist who now works as Director, EnAble India where she heads North India operations as well as media and communications outreach. Shruti writes for MxMIndia every other Thursday. Her views here are personal. To access the archives of all her 60-plus columns, please visit: https://www.mxmindia.com/category/columns/shruti-pushkarna/

     

  • Shruti Pushkarna: ‘Coupling’ with Covid: One hell of a roller coaster ride

    Shruti PushkarnaBy Shruti Pushkarna

     

    As promised, here is a personal account of my three months’ absence, when I couldn’t put pen to paper and furnish my otherwise extremely regular fortnightly column. If you are wondering what’s this got to do with the theme of disability, the answer is probably nothing. Except maybe it articulates a similar sense of helplessness and frustration, experienced by the disabled folk on varied levels 24×7. A first for me, it was truly novel and intense.

     

     

    The start of a new financial year, April 2021 saw a sudden explosion of Covid cases in the country. Delhi and NCR were badly hit. As I took my marital vows (in a close family setting), Chief Minister Arvind Kejriwal announced a curfew with immediate effect. En route to my new abode, we were stopped and questioned by cops for disregarding the latest notification. Caught off-guard, we requested the trail of cars be allowed to pass the barricade.

     

    Oblivious to the alarming crisis building outside, we chuckled and chatted, celebrating our conjugal beginnings. But in two days, things changed drastically. One after the other, the whole family tested positive for Covid-19. With each phone call, the tally went up, everyone reporting cases from their circle of family and friends.

     

    Initial symptoms of fever and cough didn’t seem so bad. It was the messaging going around that instilled fear, forcing one to imagine the worst scenarios. ICU videos of patients struggling to breathe, accounts of people dying from the lack of oxygen on their way to the hospital, shortage of beds and oxygen, hoarding of drugs, news and social media was full of it. Not to miss the emphatic promotions of oxygen concentrators, oxymeters (not made in China), homeopathy medicines and what not. Everyone and their uncle was an expert on coronavirus!

     

    Grappling with isolation and new relationship dynamics, best decisions weren’t easy to come by.  Starting with doctors.

     

    What do you do when you first start to show symptoms? Who do you call? Most physicians you’ve known all your life have no experience with Covid, so whose opinion do you trust? And to top it all, various Covid treatment guidelines floating around add to the imbroglio.

     

    For a week, we diligently followed the usual course of antibiotics, vitamins and breathing exercises. Things didn’t improve, in fact went downhill. The viral videos came to life, as my husband struggled to breathe and I made endless calls to arrange for a concentrator. We were lucky, the machine finally arrived, but as both of us tried to make the contraption work, things took a risky turn. We had to rush to a nearby hospital.

     

    I helped my husband into an ambulance and loaded my car with the oxygen backup (since the hospital wasn’t equipped), clothes and some essentials. As I got behind the wheel, my own O2 levels dipped.

     

    It seemed surreal, but it was all happening in real time and space.

     

    Picture this. My husband on one bed, breathing with the oxygen tube jutting into his nostrils, his O2 numbers fluctuating, causing the machine to beep incessantly. I lay on the bed next to him, with a cannula in my wrist, injecting steroids and antibiotics into my body. Sometimes, I tried to look out the window, for a ray of hope. But all I saw was the backyard of another hospital where new patients and dead bodies lined up daily. The beeping from the machine and the siren from the ambulance became my staple aural diet.

     

    Even so, there was no room to express any anxiety. In there, I had only one mission, to get us out of there. To make sure we got the right treatment. Thanks to my mother’s chronic illness, I have reasonable amount of experience with caretaking and dealing with doctors. I have learnt not to depend on nurses or hospital staff for adequate patient care. Services are shoddy, often due to low compensation and dearth of human resources. Given the dire circumstances and the volume of cases at the time, one could hardly blame the health workers.

     

    I saw other Covid patients on the same floor, battling alone, as no family member wanted to enter the infected zone. I wondered how many of them got proper attention. Those who weren’t medically aware or aggressive enough simply relied on whatever the staff handed out to them.

     

    It’s amazing how most citizens don’t question the treatment administered to them. Not just in Covid, doctors don’t like patients or their caretakers seeking clarification on the prescribed course of action. Bedside manners and hospital management don’t seem to feature in medical school curricula.

     

    So why am I indulging you in this elaborate excruciating extravaganza?

     

    With the scare of a third wave brewing, one can’t help worrying about what will happen if people act as recklessly as they did the last time around. I want to share some do’s and don’ts that can help.

     

    Don’t read the news.

    It never helps. Every case is different and there is no point in drawing parallels. Just focus on your body and its recovery. Also, the prime motive of coverage seems fear mongering to garner eyeballs.

     

    Don’t engage in medical updates and futile conversations.

    Limit your communication to what helps your case. Reiterations of your physical state will only exhaust you emotionally. Stick to speaking with those who ‘really’ care.

     

    Trust your doctor.

    As tempted as you might be to follow multiple medical advisories, don’t. Have faith in your doctor’s expertise and let her/him help you come out of it.

     

    Stay positive.

    The only thing that pulls you out of any tough situation is a healthy mind. No matter how bad your physical condition, remind yourself constantly, that you can overcome. Our mental state impacts our physiology, so use it to heal from within.

     

    Focus on disease management.

    Covid is all about proper management, starting from Day 1 at home. Ensure you are in touch with a good doctor from the start. Follow the advice diligently and keep an eye on changing symptoms. Take an informed call (without worrying) on when to get hospital care. Arrange for oxygen backup and have a network of friends and family lined up for remote help. If you plan and manage it well, the likelihood of recovery is higher.

     

    Don’t lose patience.

    This virus takes a toll on your body and mind, in unfathomable ways. The disease has after-effects that can trouble you for months (I’m still suffering). It’s a test of your tolerance. It helps to accept the situation and wait for it to recede, of course with necessary treatment and precautions. It’s easy to get frustrated because it turns your world upside down, but you need to exercise patience.

     

    Save for a rainy day.

    If you have money in your bank, half your stress gets taken care of. The disease starting from testing, treatment, after care and logistics, makes you bleed. Throwing money at the problem eases some troubles for sure. But be watchful of obvious traps and treachery. I wasn’t and I regret it.

     

    I must confess that working with the disabled community has given me valuable insights into acceptance, threshold and grit. And firsthand trauma made me realise what it is to be up against odds every singly day of your life.

     

    It’s been a lesson in compassion, forbearance and gratitude.

     

    (Welcome back, Shruti – Ed)

     

     

    Shruti Pushkarna heads operations of the New Delhi-based Score Foundation where she works as Director-Programmes & Communications. She is a former journalist (part of the founding team of MxMIndia) who has moved full-time to the social sector. Shruti writes for MxMIndia every other Thursday. Her views here are personal. You can tweet your comments and suggestions to @shrutipushkarna